Soleil wrote:I actually have a question for you... do you take Lyrica for your fibromyalgia?
See my mother and my maternal grandmother (so far not me...*crosses fingers*) both have fibromyalgia and my grandmother took/takes Lyrica with no issues, however my mother was prescribed it and took it for a month. She ended up always tired, massive headaches, dizzy, nauseous, EXTREME anxiety, and the shaky limbs... all of which are side effects so she stopped taking it.
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So I was just wondering if you had any experience with Lyrica in treating your fibromyalgia... I keep wondering if/when I'll get diagnosed with it since it's apparently hereditary? I don't know!
I have fibromyalgia and have a specialist in Los Angeles. When Lyrica first came out doctors started prescribing it to all their patients with fibromylagia or the patients asked for it, having seen the commercials. (you would not believe how many people called me to tell me about the drug after seeing an ad) I didn't want to take Lyrica without talking to my specialist about how it works. There are pain medications that help by effecting the body and some that help by effecting the brain and how it perceives pain. I wanted to know which it was first. When I went into his office and asked him about it he was so glad I hadn't started taking it. Apparently he had had quite a few patients start it and the suddenly had a lot of psychological problems. Gambling and sex binges on the verge of being called addictions were the two worst symptoms he had seen and told me about. Lyrica works by effecting the brain, not the body, so I never tried it.
I am on the Guaifenesin treatment. It is not a medically proven method, but it seems to have helped me a bit. I was diagnosed at 14 and bed ridden by the time I was 15. I started this treatment at 17. I am now 26 and mobile. I get a bit better all the time, but I certainly do not have a normal life. Here is my doctor's site if anyone is interested:
http://www.fibromyalgiatreatment.com/GuaiProtocol.htm
TxCat wrote:As I mentioned I was born with Ehlers-Danlos Syndrome. The diagnosis designates a group of genetically inherited connective tissue disorders (connective tissue is the stuff that holds your muscles and tendons on the joints and what parts of the veins, arteries, and other organs are made up of). It's an extremely rare syndrome. When initially diagnosed I had type II/III;
I was diagnosed with EDS years ago, but I can never remember which number it was. I know it's the least severe one. I'm just more bendy than I should be and it means I can get injured more easily and my joints are often sore, just not getting the support they need, but that's really it. And the soreness could just as easily be the fibro. Hard to tell where the line is.